Raising Awareness for AVM Research

AVM (Arteriovenous Malformation) is an extremely rare condition, affecting only about 1% of Americans. Because of its rarity, AVM research remains underfunded, and many families facing this diagnosis encounter significant challenges in finding adequate treatment options.
Fortunately, groundbreaking research is being conducted at McGovern Medical School in the Texas Medical Center, led by Dr. Roc Chen and his team. Through their innovative work, they have successfully created an AVM model in mice, paving the way for future studies on potential treatments and cures. Their work has been published in The Annals of Neurology, and they have received an NIH grant to continue their important research.

However, sustaining this research requires substantial funding. As part of the AVM Research Foundation, we are committed to supporting Dr. Chen’s work, raising critical funds to advance the study of AVMs, and ultimately improving the lives of patients and families affected by this rare condition. We believe that with continued research and greater awareness, we can change the future for those diagnosed with AVMs.
A Call for Support

Ryan’s story is one of perseverance in the face of overwhelming odds. It is a reminder of the importance of advancing research for conditions like AVM that are often overlooked due to their rarity. We are determined to make a difference, not only for Ryan but for all those who are facing similar challenges. With your help, we can continue to fund the groundbreaking work being done at McGovern Medical School and ensure that more families don’t have to face the devastating effects of AVM without hope.
Together, we can make a difference.

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