AVM Research Foundation Update
Good Afternoon! Hope everyone had a great Valentine's Day. Five years ago on Valentine's Day our family moved into our current home in Woodforest. I always joked about how any gift could ever "top" that Valentine's Day gift....and this year my gift was the greatest one ever! We were in the hospital with our son, Ryan, who had another brain surgery and this time his AVM is gone and so are his seizures! They ended up separating his entire right side of his brain from his left side. Pretty much the entire right side was either damaged, had an AVM, or was causing seizures so it really wasn't doing much of anything except causing trouble. Along with that great news, came some really exciting updates on our research with Dr. Chen and Dr. Kim. We will hopefully have a write up soon we can post with the results. Until then, we just want everyone to know that the research is going very well and more rapidly than anyone thought it would. We started up our Student Ambassador program with a kick-off meeting this past Sunday. These kids are so amazing and have such giving hearts. They will be selling raffle tickets for our 4th Annual Crawfish Boil on Sunday, April 14, 2019 so be on the look out for those. If you or anyone you know would be interested in being a student ambassador, please contact us. Thanks and God Bless everyone for their prayers and support!
Happy Belated 2019! This time of year is full of optimism and hope with New Year's Resolutions. Some of us make them, some of us don't. The truth is that every day is a new day and you can start fresh every single day. Don't be so hard on yourself...after all....we are only human:)
With that being said, AVM Research Foundation is starting something "new" this year. We are going to add a Student Ambassador group to our foundation. We are looking for any person who is in high school or younger to help us increase awareness and help raise funds. If your child is interested, or someone they know, please contact us. You can be anywhere in the world, not just in Texas! The fundraisers don't have to be EPIC (although I know they all will be!! )Have a fun run, a bake sale, or get with your school and have a "hat day" where anyone who wants to wear a hat that day has to pay $1 and the funds go to our foundation. Think of your children's baseball teams, football, cheer, social clubs, churches, gymnastics...the list goes on! We can sign paperwork if your child needs volunteer hours for school or anything else.
We have made great strides this past few months with our research! We plan on announcing all that has been going on soon! We feel this is a "Godwink" to let us know that we are doing exactly what we are supposed to be doing to help others who are facing the diagnosis of an AVM. If anyone needs speakers at an event, we would be more than happy to do that and bring about awareness.
On a different note, Ryan is looking at another brain surgery this February 12th. It is hopefully his last (he has already had 3)! He still has AVM left in his brain. Also, he is experiencing almost constant electrical activity that is causing his cognition to not be at his greatest. We hope to eventually get him off all of his seizure meds or at least decrease the dosage drastically, as they are making him extremely tired and his quality of life is definitely lacking due to excessive sleeping. Also, we are waiting on an artificial skull to be made and sent to his surgeon so that they can reconstruct his skull, as the bone reabsorption due to the surgeries has deformed his skull and it is as thin as an "eggshell". Please pray for our foundation and for the surgeons and staff, Dr. Roc Chen and Dr. Niton Tandon for everything to go smoothly and for all results to be positive. Pray that God guides their hands and their decisions. Thanks and looking forward to a wonderful and blessed 2019 for all! Thanks for all of your prayers and support! ~AVM Research Foundation
What a Wonderful Time of Year
I don't know about you, but I love the fall! Time with family and friends. Thanksgiving and Christmas are right around the corner! It is at this time of year that we often reflect on things we are thankful for. In keeping with tradition, I would like to share what we are thankful for here at AVM Research Foundation.
September and October were action packed months for AVM Research Foundation. We kicked off the fall with Woodlands Nights at Mercedes Benz of the Woodlands hosted by Network Financial. We had an awesome turnout for an after hours event raising money through a sports memorabilia auction, cigar bar, and donations from purchases through the evening. Anytime we raise money we are able to help Dr. Chen and his team continue research for better treatment and earlier detection of AVM's. Thank you to everyone who came out and were part of the event!
We followed Woodlands Nights up with the 3rd Annual Bluejack Golf Tournament!
On behalf of AVM Research Foundation and the Logan family, we would like to thank everyone who came out to support our foundation at Bluejack National. This year our tournament was dedicated to the memory of Matt Stratman (Julie Wygant Stratman), a 16 year old from Ohio who passed away from an AVM a few months ago. Please continue to keep this family in your prayers.
Rain was in the forecast, but God had other plans. He cleared the sky and made it a great day for golf. Thank you Bluejack National for hosting an INSANELY awesome tournament and thank you Rich, Staci & the entire staff who worked their tails off! Thank you Luc and the Wehby family for allowing us to honor your precious son Luc and sharing your story. Jacquie Wehby Kirk Wehby Thank you Kelly Mahoney for bending over backwards for us as ALWAYS! Thank you Rig Riders! I honestly can say I never thought my 16 year old son would be in a Bikers Club! LOL! That was AWESOME and the love you showed us was incredible.
Thank you Fuzzy's Vodka, Walk-Ons, DVL Concepts, Norton Ditto (The Woodlands and Houston), Northside Imports, Ashlee Smith Morris (Remax Realtor), Chairma Design (Christy Christi Cox Petty), Stacey & Brad Risner, AJGA (and Mark Ingebrigtsen for setting that up!), Tru-Lucks (The Woodlands), Ada Coffman, & Brian Naugle. Thanks Meg Doyle for your photography!! Thanks to all of the players who supported us and we hope you had a fantastic experience! We raised over $115,000 thanks to all of YOU!
The AVM team works to deliver up to date information on the Foundation, AVM's, better treatment and earlier detection for AVM patients.